Sonwabile was born in 2004 and diagnosed with a rare liver disease called Budd Chiari Syndrome. This occurs when a clot narrows or blocks the hepatic vein and causes the blood to accumulate in the liver, causing it to enlarge and eventually leads to severe damage. He also has a Polycystic Kidney and started RVD treatment in 2009.
Metro Kids Africa operates in impoverished communities and found Sonwabile very ill at home and took him to hospital. He had reached the terminal stage of his illness as a result of default in treatment. His doctors referred him to SJH in 2010 for palliative care.
This young man is now 7 years old, in Grade 1 and an inspiration to those who know him. He has travelled a journey that many of us cannot even begin to imagine and no-one knows how far he can travel. What we do know is that he lives each day as a child should and is surrounded by people who love him.
Sonwabile is now in a stable condition as a result of him receiving his medication on time, good nutrition and just as important, living a normal life which involves going to school, playing and spending time with his friends. We shall continue to ensure he lives his life as a child should.